an autistic teenager's family in 14 years

    2021-12-29 13:37:23 by SICC

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    轩轩是一个钢琴十级的爱笑少年。今年夏天,他开始和爸爸一起,在家附近广场的一块大草坪售卖玩具。然而,这对看似平凡的父子卖玩具的视频却于12月13日在新浪微博“出圈”,相关话题收获了上亿阅读量。其实,视频的背后,是一家人14年不为人知的艰辛。

    Xuan Xuan is a teenager who always has a big smile. This summer, he started to sell toys on a lawn near his home with his father. However, a shortvideo clip about thecommon father and son has become widely known on December 13thin Weibo, the related posts even got 100m views. In fact, behind the sudden exposure, is the tribulations and struggles of a whole family, lasting for 14 years.

    2008年轩轩出生,仅三月后被确诊自闭症。更加不幸的是,七岁时,轩轩又患上了地中海贫血。自此之后,轩轩的父母和奶奶,陪着轩轩开始了漫长的音乐治疗之路。

    Only after three months when Xuan Xuan was born in 2008, he became one of theconfirmed patients of Autism. What’s worse, when he was seven, he was diagnosed thalassaemia. After that, Xuan Xuan, with his parents and grandmother, has been on the road to recovery with music therapy.

    学钢琴的过程并非一帆风顺。在经历了因病被拒之后,他又陷入了新的困境,他的手指无法打开。为了得到教育的机会,奶奶帮孙子一个指头一个指头按摩。一个月后,轩轩终于开始了学琴之路。在每天至少2小时的坚持训练后,轩轩陆续在2016年通过钢琴五级、2018年通过钢琴十级。

    His music journey was notplain sailing. Facing his illnesses, many piano teachers hesitated. Even worse, he had trouble instretchinghis fingers, which is a severe problem to learn piano. In order to learn piano, Xuan Xuan’s grandmother massaged his fingers one by one for a whole month. Afterthat, a teacher consented to teach him piano. With at least two hours’ practice every day, Xuan Xuan passed the tests for piano level 5 in 2016 and piano level 10 in 2018.

    2019年,已经有了一些独立生活的能力的轩轩需要的是社交能力的发展,为此,父亲干强告别了工作20年的重庆,回家当起超级奶爸和“社交老师”,并将儿子的康复过程和心得以短视频的方式告诉大家。轩轩卖玩具的视频也因此而走红。

    In 2019, with the increasing ability to live independently, what Xuan Xuan needs at that time, was the willingness to social.For this, Xuan Xuan’s father, Gan Qiang,said his farewells to the city Chongqing where he hadworked for 20 years, and went back to Chengdu. He aimed to be the so-called Super Dad as well as a “social tutor”. Gan started to share Xuan Xuan’s life byrecordingshort video clips, because of which, the one about selling toys went viral.

    在父亲的培养下,轩轩从一开始的自顾自地拿着玩具玩、自言自语重复说“卖玩具……卖玩具”,到现在能够清楚地记得每个玩具的价格,并愿意走到他人面前叫卖。

    At first, Xuan Xuan can only play with the toys by himself, or repeating to say, “toys for sale…toys for sale”.But with father’s company andtraining, now he can clearly remember the price of each toy, and is willing to cry his wares.

    如今,轩轩情绪失控的时刻越来越少,生活自理能力也渐渐提高。干强也带孩子攀岩、游泳,在跆拳道馆进行更多种的康复训练。

    At present, Xuan Xuan has developed a stronger ability to control his emotions and live independently, so he started to join in different kinds of recovery training activities such as rock climbing, swimming and taekwondo with his father’s help.

    新年将至,轩轩的父母达成共识:轩轩的情绪控制能力在随着康复训练变强,是时候请一位专业的老师锻炼他的语言能力。爸爸的短视频里,记录了轩轩成长的点点滴滴,也记录了爸爸的爱。“以后我的短视频账号就是留给轩轩的礼物。”轩轩爸爸说。

    Thenew year is coming andXuan Xuan’s parents areon the same page: with the recovery training,Xuan Xuan’s ability to control his emotions becomes stronger, so it’s time to let a professional tutor to tap his language potential. Xuan Xuan’s daily life and stories are recorded in his father’s video clips, so is his father’s love. “This video account is the gift I will leave for my son”, said his father.